Hi everybody. Welcome to the blog where I talk about the present.
Oh man, my frustration level is at an all time high. You see, someone I care for very much has covid. They are far away. When I was normal, I would just hop on a plane or hop in my car and just hit the road, you know, for moral support and any medical support I could lend. But things are different now. The best i can do is just have someone pick up the phone for me. It’s all very frustrating. Just another thing you have to cope with when you have a traumatic brain injury, I guess. It’s interesting, I’ve been watching no news, and I watch romantic comedy. No action films or suspense dramas. Because of all this, I don’t have auras, like I used to. Auras are a precursor to a seizure. But I’m on anti seizure medicine which will basically stop a seizure from happening.
On another note, I had a team meeting with all the people who look after me. It was a good meeting. When you navigate through this world with a traumatic brain injury, you know, the medical world, you’ll come across some people that are very cool. They’ll take their time off to meet you and truly advocate for you. It’s rare, but they exist. One such woman is a woman named Lisa Howard. It’s important you know this name, because she’s in charge of the lower Hudson Valley Traumatic Brain Injury Waiver Program. Yeah, like her, there are people out there who will advocate for you. It’s important you have people like this because unlike me, millions of people can’t speak up for themselves. I guess I’m lucky in that regard. I just have one question for all you guys, does anybody out there know when all this BS is gonna end? I need a vacation! Probably everyone feels like that right now.
Hey! on another nother note. My physical therapist came by and I took a couple of steps with a walker. It was very cool. But I was using muscles I haven’t used in a couple of years. It was tough. Just another step towards walking. It was exciting and positive reinforcement. Something you definitely need when you’re like this! It’s amazing how something so simple can make you happy. It was exhausting though. Thank god I used to be an athlete. I used to have strong legs. I guess it’s another reason to stay in shape. You never know what’s around the corner.
I’m gonna go enjoy the sun and the flowers. It’s spring here and it’s nice to hang outside in the sun.
Talk to you guys next week. Love you.
Love, B. Nice